64. Besah

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If I go to the church, I sing the church songs and I’m happy. Sometimes when I see my kid, I’m happy. If I get the person to help me forget my problem, I am happy.


I had four years and I was walking. One day I was walking to mango trees, so I was sitting if my mother cannot carry me. That’s when I had the convulsion. I would crawl so I could not go to the school. So from my house to the school is far. It’s one mile. Sometimes I would cross the river before I go school, so sometimes my knee is burning. I didn’t have a wheelchair yet. After I completed the junior high school, some people helped me and gave me the wheelchair.

I have a family but my family doesn’t help me. Sometimes I’m working at the sewing machine small, before you give the money when you buy something while shopping. So from one day I may not get anything. My family doesn’t give me anything.

And your friends?

I do not have friends.

Is it because of the discrimination?

Sometimes people tell me they don’t like disabled people. I don’t know why.

What is the most difficult experience you have had related to your disability?

My problem is difficult for me. Sometimes I call the person, “Give something to me,” but I don’t get the person to give something to me. Sometimes if I call the person, “Give me water”, I don’t get the person to give me water. This one is the problem for me. Sometimes if I go to my hometown, if I enter the car, the driver or mate don’t like me going into the car. This one is the problem for me.

So if the President came to you and asked you, “What can I do to make your life better?”, what would you tell him?

Help me for the work. Sometimes I only have the work so if the first work stops I don’t get another one. I’d tell him that he should help me.

And if you meet another person with a disability, what would you tell them?

I will advise another disabled that he come and join the new group, the Disability Needs Foundation, so that we are helped.

What is your happiest experience?

If I go to the church, I sing the church songs and I’m happy. Sometimes when I see my kid, I’m happy. If I get the person to help me forget my problem, I am happy.


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